ArborMetrix Blog

What You Can Learn from Registries with Solid Patient-Reported Outcomes Programs

Can you hear it? The patient voice is getting louder.

Healthcare organizations are increasingly using patient reported outcome surveys to gather information about health status, symptoms, and patient-centered outcomes that take place in between visits and outside of a physician’s scope of access.

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3 Essential Steps for Successful Patient Surveys

Healthcare analytics technology and clinical data registry software have made it easier to collect, organize, and analyze actionable, patient-sourced data.

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How to Engage Patients and Collect Valuable Patient-Reported Data

Nearly half of the specialty societies that responded to a 2019 registry survey by the Council of Medical Specialty Societies reported they engage patients in their registry initiatives.1

This could all be changing – only continuing to grow – especially with the recent and significant transition of routine appointments to telemedicine visits. Keeping patients engaged in their health and invested in their outcomes has never been more important.

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Patient-Reported Outcomes and Clinical Registries: The Basics

More and more clinical data registries are including the patient perspective with patient-reported outcomes (PROs). In a recent member survey of the Council for Medical Specialty Societies (CMSS):1

  • 36% of the registries reported having engaged patients or patient groups.
  • 24% of the registries reported having incorporated patient-reported outcomes into clinical registry data.
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Defining Success for Your Patient Registry

Medical specialty societies and patient foundations aim to improve healthcare. Patient registries are one of the greatest instruments that guide how best to do that.

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