News and Press

Interactive Patient Dashboard Serves People Affected by Bleeding Disorders to Improve Quality of Life, Advance Research

ArborMetrix - Oct 4, 2019 2:25:06 PM

National Hemophilia Foundation Showcases MyBDC at its 71st Bleeding Disorders Conference

ANAHEIM, CALIF./OCT. 4, 2019  - People affected by rare diseases and conditions such as hemophilia are often over-surveyed by healthcare providers, researchers, and other organizations looking for answers to some of medicine’s most complex questions. So when the National Hemophilia Foundation set out to launch a patient registry centered exclusively on longitudinal patient-reported data, they knew they needed to create something that would extend unique value to patients and their families.

Topics: quality improvement- patient reported outcomes- clinical data registry

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National Hemophilia Foundation Partners with ArborMetrix

ArborMetrix - Dec 3, 2018 10:16:00 AM
National Hemophilia Foundation

ANN ARBOR, MICH./DEC. 3, 2018 – The National Hemophilia Foundation (NHF) has selected ArborMetrix as its technology and analytics partner to deliver an innovative and groundbreaking patient-reported research registry. NHF’s overarching aim for the registry is to support research activities that will improve the quality of life of persons with a bleeding disorder and enhance the ability of external researchers to discover transformational therapies and, ultimately, contribute to finding a cure.

Topics: ArborMetrix news- patient reported outcomes- clinical data registry

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