Nearly half of the specialty societies that responded to a 2019 registry survey by the Council of Medical Specialty Societies reported they engage patients in their registry initiatives.¹

This could all be changing – only continuing to grow – especially with the recent and significant transition of routine appointments to telemedicine visits. Keeping patients engaged in their health and invested in their outcomes has never been more important.

More and more clinical data registries are including the patient perspective with patient-reported outcomes (PROs). In a recent member survey of the Council for Medical Specialty Societies:¹

• 36% of the registries reported having engaged patients or patient groups.
• 24% of the registries reported having incorporated patient-reported outcomes into clinical registry data.

Sound Physicians is a national medical group focused on acute, hospital-based care. Sound is the largest hospitalist and critical care group in the United States, with more than 3,500 physicians and advanced practice providers in hospital medicine, intensive care, and emergency medicine, at more than 250 hospitals located in 36 states.

In addition to its national scale, Sound is also a leader in physician performance and analytics. They rely on an advanced analytic and IT infrastructure and workflow to improve care, manage performance, and monitor trends.

Medical societies and patient foundations are playing an important role in the fight against COVID-19. They are adapting their registries to collect, analyze, and share data about the virus and its impact on patients, physicians, and other caregivers.

As we face the continually evolving pandemic of COVID-19, each day brings new challenges and opportunities to learn from our shared experiences. This education is fueled by the hard work and dedication of individual clinicians, care teams, research institutions, and medical specialty societies around the globe.