ArborMetrix Blog

Best Practices for Clinical Registries with New Research Priorities

You set goals, outlined plans, and hit milestones. Then 2020 changed - in a big way. Questions came. Priorities shifted. Opportunities emerged.

Despite uncertainty, there are a few things to be sure about:

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3 Essential Steps for Successful Patient Surveys

Healthcare analytics technology and clinical data registry software have made it easier to collect, organize, and analyze actionable, patient-sourced data.

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How to Engage Patients and Collect Valuable Patient-Reported Data

Nearly half of the specialty societies that responded to a 2019 registry survey by the Council of Medical Specialty Societies reported they engage patients in their registry initiatives.1

This could all be changing – only continuing to grow – especially with the recent and significant transition of routine appointments to telemedicine visits. Keeping patients engaged in their health and invested in their outcomes has never been more important.

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Patient-Reported Outcomes and Clinical Registries: The Basics

More and more clinical data registries are including the patient perspective with patient-reported outcomes (PROs). In a recent member survey of the Council for Medical Specialty Societies (CMSS):1

  • 36% of the registries reported having engaged patients or patient groups.
  • 24% of the registries reported having incorporated patient-reported outcomes into clinical registry data.
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Top Examples of Quality Improvement through Clinical Registries

Achieving real-world quality improvement in healthcare delivery benefits everyone. Patients have improved outcomes and a higher quality of life. Physicians use evidence-based insights to make decisions and advance care. Hospitals and payers achieve efficiencies and greater savings.

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